Tesis

Uji Kesahihan dan Keandalan Kuesioner Neurogenic Bladder Symptom Score dalam Bahasa Indonesia untuk Menilai Kualitas Hidup Pasien Cedera Medula Spinalis = Validity and Reliability of The Indonesian Version of Neurogenic Bladder Symptom Score Questionnaire to Assess Quality of Life of Spinal Cord Injury Patients.

Latar belakang: Gangguan berkemih neurogenik merupakan salah satu komplikasi tersering pada pasien cedera medula spinalis (CMS) dan berdampak signifikan pada kualitas hidup. Belum tersedia instrumen baku dalam Bahasa Indonesia untuk menilai hal tersebut. Neurogenic Bladder Symptom Score (NBSS) merupakan instrumen komprehensif yang telah digunakan luas secara internasional untuk menilai berbagai domain fungsi berkemih pada pasien dengan neurogenic lower urinary tract dysfunction (NLUTD) yang terdiri atas 4 domain (Inkontinensia, Penyimpanan & berkemih, Konsekuensi, Kualitas Hdup) dan 24 pertanyaan Objektif: Melakukan adaptasi transkultural NBSS ke Bahasa Indonesia dan menguji kesahihan serta keandalan instrumen hasil adaptasi Metode: Proses adaptasi mengikuti 10 langkah pedoman international society of pharmacoeconomics outcomes research (ISPOR) mulai dari preparation, hingga final version. Uji kesahihan meliputi content validity, face validity, criterion validity, dan construct validity. keandalan dinilai berdasarkan konsistensi internal dan pengulangan 2 pekan pasca pengujian pertama pada responden. Hasil: Terdapat 6 subjek pra-pengujian untuk menilai face validity dan 101 subjek uji untuk melakukan pengisian dan pengulangan (test-retest) sesuai periode pengujian. Content validity dan face validity dinilai baik. Criterion validity dilakukan dengan membandingkan domain dengan skor total, didapatkan nilai r 0.7 untuk domain konsekuensi dan kualitas hidup, dan r 0.8 untuk domain inkontinensia serta penyimpanan & berkemih. Construct validity antara masing-masing pertanyaan dengan domain dinilai baik. Konsistensi internal dinilai baik dengan Cronbach’s alpha 0.895, dan hasil pengulangan yang baik dengan intraclass correlation coefficient (ICC) 0,897, p < 0.01 Kesimpulan: Kuesioner NBSS Bahasa Indonesia dinilai sahih dan andal baik secara konsistensi internal maupun dari hasil test-retest
Kata kunci: cedera medula spinalis, neurogenic lower urinary tract disorder, kualitas hidup, kesahihan, keandalan


Background: Neurogenic lower urinary tract dysfunction (NLUTD) is one of the most common complications in patients with spinal cord injury (SCI) and significantly impacts quality of life. Prior to current research there is no standard instrument available in Bahasa Indonesia for this problem. The Neurogenic Bladder Symptom Score (NBSS) is a comprehensive instrument that has been widely used internationally to assess various domains of urinary function in patients with NLUTD. It consists of four domains (Incontinence, Storage & Voiding, Consequences, Quality of Life) and 24 questions. Objective: To conduct transcultural adaptation of NBSS into Indonesian and testing the validity and reliability of the adapted instrument. Method: The adaptation process followed the 10-step International Society of Pharmacoeconomics Outcomes Research (ISPOR) guidelines, from preparation to the final version. Validity tests included content validity, face validity, criterion validity, and construct validity. Reliability testing was assessed based on internal consistency and a repeat test two weeks after the initial testing on respondents. Results: There were 6 pre-test subjects to assess face validity and 101 test subjects to complete and repeat (test-retest) according to the testing period. Content validity and face validity were assessed as good. Criterion validity was conducted by comparing domains with total scores, obtaining an r value of 0.7 for the consequences and quality of life domain, and r 0.8 for the incontinence and storage & voiding domains. Construct validity between each question and the domain was assessed as good. Internal consistency was assessed as good with a Cronbach's alpha of 0.895, and good repeatability results with an intraclass correlation coefficient (ICC) of 0.897, p < 0.01. Conclusion: The Indonesian NBSS questionnaire is valid and reliable both in terms of internal consistency and test-retest results.
Keywords: spinal cord injury, neurogenic lower urinary tract disorder, quality of life, validity, reliability